May .... and chock full of milestones
Hello all -Yes, it has been a long time since I blogged last. Since the news of being disease free at the beginning of April, we began the taper of my immune supressants. We drop 25 mg every other week. It's a moderate pace (so they say) ... [read more]
Posted on Tuesday May 27, 2008 by Pam and Troy
Day 100 and the LONG awaited two words......
CANCER FREE !!!!!!!!!!Yahoo!!!!!!!!!!!! I had a PET scan on Tues. April 1st (I mean, really, if THAT"S not totally ironic!), and for the first time was not anxious about the results. Dr. Meehan had already been telling us for weeks that there was no expectation the disease would ... [read more]
Posted on Friday April 4, 2008 by Pam and Troy
A little perspective ... funny style
My dear friend Anita sent this to me last year when I first lost my hair.The other day, my good buddy Amy sent it to me as well...... I like who I hang with ! Good minds think alike :) .......Attitude There once was a woman who ... [read more]
Posted on Monday March 24, 2008 by Pam and Troy
Happy Spring!
We've had a couple of good and busy weeks here. Last week I was feeling a little more tired than usual for some reason and had lots of skin sensitivity. This week, some of my daily little symptoms I have haven't been as bad and my energy has ... [read more]
Posted on Thursday March 20, 2008 by Pam and Troy
Update ..... ok,ok not "weekly"
So I haven't updated in a bit. I know, I know. I've been reminded :) Anyways, that's kind of a good thing. Everything is just status quo and "great" are the words at my weekly Thursday trips to DHMH. Here's what that looks like....Each week I arrive ... [read more]
Posted on Tuesday March 4, 2008 by Pam and Troy
Weekly Update
It has been quite a crazy week around here. The Giants won the Super Bowl (and being the only Giant fan in the house, at least I was happy!) A stomach bug hit the house and started with Tucker and ended with Pam. (Griffin and I seemed to ... [read more]
Posted on Friday February 8, 2008 by Pam and Troy
Daffodils for the American Cancer Society
Hello everyone -I thought by post my friend Porter's email, that would not only be a great way to spread the word in Bristol, but all those that come through Bristol, and make those in other areas aware of Daffodil Days for the American Cancer Society, which you can purchase ... [read more]
Posted on Wednesday February 6, 2008 by Pam and Troy
I had to go back and read my last posting to see where I left off. Time passes so much faster being home .... even if my only "event" during the day is a walk.But, that's also about where my energy level and ability to focus has been. ... [read more]
Posted on Tuesday January 29, 2008 by Pam and Troy
time passes faster when you're home
Saturday already? Well how'd that happen?Well my activities are not a whole lot different from the hospital (sit in the sun in a favorite chair and either read, knit, eat, or just stare). But...... I get to move around!!!!! Up and down stairs, room to room, walk ... [read more]
Posted on Saturday January 19, 2008 by Pam and Troy
Release!
So last night at 6pm, on day 19, Pam was released. We are home and having a late breakfast, which is great medicine after 15 days in the hospital. It was quite a day with lots of docs having lots of conversations about the darn fever issue.Pam is ... [read more]
Posted on Tuesday January 15, 2008 by Pam and Troy
Every 12 hours is different!
It is Sunday night, and Pam is still here at DHMC. It has been a very frustrating few days for her. Her counts have risen dramatically and been right on track. The problem is that she is continuing to run a fever, not high (100.8 to 101), ... [read more]
Posted on Sunday January 13, 2008 by Pam and Troy
So it's legit......
so .... get a load of this, on Monday, Day 12, we saw a little teeny tiny peek of an increase in my ANC. Meehan keeps reminding me usually between day 15-18, this would be unusual, but could be real. We'll know tomorrow. I reminded ... [read more]
Posted on Wednesday January 9, 2008 by Pam and Troy
day 12
those little tiny white cells (WBC) and more importantly, absolute neutrafils (ANC), they're the real infection fighters, have started to peek their heads up a bit. it's a bit early, usually between days 15-18 is when it happens, "it's a little unusual but could be real" says dr. Meehan, ... [read more]
Posted on Monday January 7, 2008 by Pam and Troy
DHMH is boring compared to Bethel.....
So far so good still ....Today was a blood transfusion, which I've been expecting to happen. My counts came back (7.8) - the norm for women (12.0-15.0). Well, sure enough, Doug's blood is in! My former blood type was O-, but not today... as the bag came up, ... [read more]
Posted on Friday January 4, 2008 by Pam and Troy
update with a giggle
Hello all and greetings from down south here in sunny Aruba .... uhhh , I mean sunny (and snowy) DHMH. I HIGHLY recommend coming to the towers. I mean this place has miles and miles of corridors... I mean trails for hiking. The service is top ... [read more]
Posted on Wednesday January 2, 2008 by Pam and Troy
Now an inpatient
Happy New Year! We are officially ringing in the new year at DHMC with hope and faith for a healthy 2008 and beyond.Pam was admitted today. She had a neutropenic fever last night (very mild) and they wanted to watch her today closely. Her blood pressure is also on the ... [read more]
Posted on Monday December 31, 2007 by Pam and Troy
Day +4
So I thought I would take you through a typical day in the life of Pam and I right now. If you have ever seen the movie Groundhog Day with Bill Murray then you can already get a mental picture. We wake each morning at the Residence Inn around 7:30 ... [read more]
Posted on Sunday December 30, 2007 by Pam and Troy
Day +1
The cells are in! Go get 'em boys!!! The cells were infused yesterday afternoon and we now hold on for the ride. It will take a few days for the effects to really start to kick in as the immune system is gradually tapered. We may get to become outpatient ... [read more]
Posted on Thursday December 27, 2007 by Pam and Troy
Day -3
Today is day -3 which means that we are 3 days from the cell infusion. That will happen on Wed. the 26th and is considered day Zero. Every day after that gets a + (+1, +2, etc) in front of it. It got harder for Pam today. ... [read more]
Posted on Sunday December 23, 2007 by Pam and Troy
What a difference a few hours makes. AKA:Here we go...
So...We got a phone call on Tuesday afternoon (shortly after Pam did the blog update) and were told that the procedure was being moved ahead. So as I write this, Pam is hooked up to her first dose of pre-transplant chemo. We are at DHMC and will be here until ... [read more]
Posted on Thursday December 20, 2007 by Pam and Troy
quick update
hello all -almost two weeks has passed by quickly since the last posting .... filled with MANY appointments, tests and consults during the week and socials on the weekends.Dec. 10th - our PET was ok; not much change from the Nov. PET - no more receding, but no growth really ... [read more]
Posted on Tuesday December 18, 2007 by Pam and Troy
The Plan is starting to come together
Hello everyone. We have started to get some dates down for the transplant. We met with Dr. Meehan yesterday and walked through some of it. It looks like it will be after Christmas!! Yeah! He seems to think that waiting one more week will not be ... [read more]
Posted on Thursday December 6, 2007 by Pam and Troy
A Thank You
A Huge andHeartfelt ThanksOn behalf of Pam and Troy,the organizers of the numerous events and effortsthat took place over the last monthwould like to thank all of you for your contributions.The wonderful energy generated for the Paradee familycame from all of us hiking, praying, donating, running,skateboarding, cooking, and gathering together.The ... [read more]
Posted on Sunday November 18, 2007 by Pam and Troy
a piece of good news
Yesterday I had a PET scan and today we had our follow up to find out what it showed. And for the first time in a looooonnnnngggggg time, we had a good PET report!! The cancer is responding to the chemo I am currently receiving and knocking it ... [read more]
Posted on Tuesday November 13, 2007 by Pam and Troy
October's - Hiketober, Skatetober, Soxtober, and YOU ALL ROCKtober!
I'm going to try this again. I sat down Friday a.m. and wrote a detailed and lengthy BLOG, then..... the laptop froze up and lost it. So this will be a brief BLOG (unless I get rolling) as a reminder of where we are at. I've been pretty ... [read more]
Posted on Friday November 2, 2007 by Pam and Troy
